Our Partner Organisations

Group of people with Barth Syndrome

NHS Specialised Service for Barth Syndrome

  • Address:
    • Bristol Royal Hospital for Children
    • Level 6
    • Education Centre
    • Upper Maudlin Street
    • Bristol
    • BS2 8AE
  • Telephone: 0117 3429335 (with voicemail)
  • Email: BarthSyndromeService@uhbw.nhs.uk

Barth Syndrome Foundation

  • Address:
    • 2005 Palmer Avenue #1033
    • Larchmont, NY  10538
    • United States
  • Tel: Toll Free: 855-662-2784 or 855-NO-BARTH
  • Local Line: 914-303-6323
  • Website: www.barthsyndrome.org
  • Email: Contact Us

Association Barth France

Barth Italia Onlus

Barth Syndrome Foundation of Canada

  • Address
    • 162 Guelph Street,
    • Suite 115 Georgetown,
    • ON L7G 5X7
    • Canada
  • Telephone: 1-888-732-9458 or 905-873-2391
  • Website: www.barthsyndrome.ca
  • Email: Contact Us