Emergency Information

Emergency contact phone for Barth Syndrome

Please call 999 in the case of any life-threatening emergency. You may find the resources below useful if needing to be admitted into hospital urgently.

Resources

Hospital Management Plan (children)
Hospital Management Plan (adults)
Anaesthesia Guidelines
Managing diarrhoea and/or vomiting

Contact Details in case of Emergency

Please contact the NHS Specialist Service for Barth syndrome (Monday- Fri 9am – 5pm) if you need any information regarding a seriously unwell patient:

Email: barthsyndromeservice@uhbristol.nhs.uk
Tel: 0117 342 8102
Specialist Nurse: 07795 507294 (mobile)