In memory - Dragonfly Memorial Page

Dealing with loss

The death of someone you love is the hardest thing to bear and each person’s journey is different. We hope we can provide a small measure of comfort as well as a signpost to resources which may help you.

Never forgotten

One of the worst things that can happen after the loss of your precious child is that people suddenly stop talking about them. This is usually because they don’t want to cause you any further pain or because they may never have had to deal with grief before and feel uncomfortable and awkward.

We celebrate the lives of our precious children and adults whose memories live on in our hearts and minds. Our lives were enriched by their presence and we will not forget them.

Talking to someone

You may feel the need to talk to someone who knows you and who knew your child and if so, we can put you in touch with other bereaved families who know what you’re going through and who also know specifically about Barth syndrome.

Sometimes it can be hard to talk to the people you are closest to, for fear of “bringing them down” or because they might be dealing with their grief in a totally different way to you.  Often, at these times, it can be helpful to talk to someone who understands what you’re feeling but is not closely connected to you.  Perhaps you could contact the Child Death Helpline to talk to another bereaved parent.  We can also signpost you to a counsellor who works actively with many of our affected families.

Helping your other children deal with the loss of their sibling

At a time when you are experiencing your own grief at the death of a child, it can seem overwhelming to offer support to your other child or children.  Please contact us if you would like to talk through any issues you’re facing and together we can try to help.

Winston’s Wish is the leading charity in the UK for bereaved children and there are many excellent resources on their site as well as a helpline which is open from Monday-Friday.