What is Barth syndrome?
Barth syndrome is a rare genetic condition that usually affects boys and men (though we do have girls within our group)
Main symptoms:
- Heart muscle weakness (cardiomyopathy)
- Neutropenia (lack of white blood cells needed to fight bacterial infections)
- Fatigue and general muscle weakness
- Growth/feeding issues
Barth Syndrome UK is a well-established community of families, medical professionals, scientists, donors and volunteers with links to other affiliates all around the world. We provide the most comprehensive source of reliable and current information about this condition and we invite you to visit our pages to find the information you seek.
How you can help
There are many different ways you can help, and volunteering can easily fit in with the time you have available. Volunteers often say how much satisfaction and enjoyment they get from being part of our community - contributing existing skills and learning new ones. Please contact us to talk about how your skills and interests best align with our work.
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Help us fundraise
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Make a one-off or monthly donation via our PayPal charity account using PayPal or a debit or credit card.Donate nowMake a text donation
Text BARTH to 70450 to donate £5Text BARTH to 70460 to donate £10
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