Saving lives through education, advances in treatment and finding a cure for Barth syndrome
Our Global Approach to Research
Our approach towards research is one where BSF (USA) runs the global research program, with affilates like us around the world contributing by involving our UK researchers in an international peer-reviewed program and by assisting with funding wherever possible.
This centralised approach has proved to be scientifically rigorous, ensuring that only the best projects are funded, through an impartial and expert peer review process. It fosters global collaboration and is good value for money.
We invite you to visit the main BSF website for a wealth of information around the following topics of interest:
- Grant Program
- Researcher Resources
- Animal and Cellular Models of Barth syndrome
- Biobanked Patient Samples and Transformed Cell Lines
- Registry
- Human Tafazzin Gene Variants Database
- Clinical Trials
