Saving lives through education, advances in treatment and finding a cure for Barth syndrome
About Barth Syndrome UK
We are a small community dedicated to helping those with Barth syndrome - a sometimes fatal, often debilitating genetic condition.
Working together we are making a difference in the lives of children, affected individuals and their families. One day there will be a cure; please help us make that day come sooner.
Please read more about our achievements in our Case for Support.
